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Access to NDSS data

Researchers, universities, government and non-government bodies may request access to NDSS data for health service planning, to assist with recruitment of people with diabetes into research projects, or for other purposes.

Please read our External Research and Data Request Policy.

This policy details background information:

  • about NDSS data
  • types of requests
  • how requests are assessed
  • the process for requesting NDSS data
  • maintaining confidentiality and privacy
  • charges for providing data
  • provision of reports and acknowledging the NDSS.

Enquiries

Please contact the Privacy Officer to discuss options for requests or for further information at privacy@diabetesaustralia.com.au

Applications

Before proceeding, please read our External Research and Data Request Policy.

In order to process any requests and to prevent any unnecessary delay the following much be completed:

Please note where data is publicly available through the Australian Diabetes Map any requests for NDSS data applications will not be processed. 

Allow a minimum of 15 business days to process an application, noting complex extracts may take longer. Please note no changes to requests will be accepted once the application form has been received. Where changes are necessary, a new application form will be required resulting in additional processing time.

Diabetes Australia will assess the application to determine whether we are able to approve the application to facilitate recruitment of people registered with the NDSS or access to NDSS data as requested and respond to the applicant accordingly.  We assess all research and data requests applying specific criteria, such as the value of the research and the protection of the privacy of the individuals who have consented to be involved.

With the current Coronavirus (COVID-19) pandemic the Department of Health has advised that all research requests to contact people registered with the National Diabetes Services Scheme (NDSS) are postponed until further notice.

This is to enable people with diabetes to concentrate on how to best manage their diabetes and not overwhelm them with additional information in these uncertain times.

Should organisations and researchers deem there to be exceptional reasons to proceed with a research request, further information to support the need to continue will need to be submitted. These will be reviewed on a case-by-case basis by the Department of Health.